Involving autistic people in autism research

There's a very interesting blog from Sue Fletcher-Watson, in which she looks at how autistic people are and can be involved in autism research and how their voices can be heard and represented.  We have also published interviews with Prof Liz Pellicano, and Prof Fred R Volkmar, which all highlight the importance of involving autistic people in research that concerns them. 

We would like to hear about your experiences.  How do you make sure that autistic people are involved?  What hurdles do you face when trying to do so?  How do you ensure non-speaking autistic people and autistic people who also have learning disabilities are able to voice their opinions in research that concerns them?  How can we encourage researchers to focus on what matters to autistic people and their families?