Promoting autistic involvement in autism research

The Conversation features an article by Liz Pellicano, exploring how the rise of autistic activism is helping to create campaigns and research that meet the needs and priorities of the autistic community rather than those set by non-autistics. Liz discusses a recent example of participatory autism research involving young autistic people which explored their experiences of mental health. Liz suggests that although participatory autism research is still the exception, more organisations are prioritising autistic involvement in all stages of research.

Date added: 13 April 2018


Sat, 14/04/2018 - 11:20

As an autistic adult I agree with the approach of involving autistic people in autistic research. The research impacts on the autistic community so it makes sense to involve autistic people in research that will affect them.

I completed a degree in sociology in 2016 and I am currently in the process of finishing a Masters by Research were my topic is the thoughts and opinions of people involved in the support of autistic students in transition from further education to igher education. This has been extremely difficult for me as I have had to change my thought processes on how I study and research and with all the study books written non-autistics I have had to find my own ways to get the ideas in my head out onto paper and make sense to the non-autistic world, but I believe I may have done it.

I have secured a place to study for a PhD and again my topic will be autistic people. I know there are other people on the spectrum who are studying at Masters and PhD level, but I hope we can inspire more autistic people to not only get involved in research about autism but to consider going to university to study for a degree and to conduct their own research projects into what it is like to be an autistic person in a non-autistic world.