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Self-advocacy within disability organisations

A doctoral research project at the Tizard Centre (University of Kent) is looking at how autistic people and people with a learning disability participate in the work of disabled people’s organisations, and aims to explore the factors that facilitate or hinder self-advocacy in organisations. The project included 44 participants: self-advocates (both autistic people and people with a learning disability), parent advocates and professional advocates in the UK and in Hungary.

Findings were consistent between the two countries and across all participant groups. Self-advocates, parents and professionals all agreed that autistic people (and people with a learning disability) are usually included in disability organisations in tokenistic ways. They are often only informed about decisions made by organisations, and consultations can be superficial. Some people mentioned good practices, for example where autistic people control organisations. The research article is open-access and appears in the Laws journal

Date added: 16 November 2018